2024-03-29T07:25:51Z
https://u-ryukyu.repo.nii.ac.jp/oai
oai:u-ryukyu.repo.nii.ac.jp:02016908
2022-02-22T07:19:30Z
1642838163960:1642838198944:1642838199408:1642838232086
1642838403551:1642838412624
Japanese fathersʼ experience with children with profound intellectual and multiple disabilities
Hasegawa, Tamayo
Koja, Yasuko
Endoh, Yumiko
Tamashiro, Yoko
open access
琉球医学会
Child with PIMD
Fathersʼ Experience with Living Child
In-home Medical care
Modified Grounded Theory Approach
Children with severe or profound intellectual and multiple disabilities (PIMD), who have high medical care needs, are under constant pressure of survival and their growth processes are difficult to predict. Although research has shown significant psychological and social burden on parents taking care of such children, research on Japanese fathers has been scarce. This study aimed to clarify the suffering and judgment of Japanese fathers following the birth of a PIMD child and describe their experiences living with a preschool PIMD child. We also discussed the effect of nursing support on maintaining the dignity of fathers by deeply understanding the nurture experience. Verbatim records of semi-structured interviews conducted with eight fathers were analyzed based on the Modified Grounded Theory Approach. Twenty-eight concepts were generated along with the following four categories: (i) fear for the childʼs life and a feeling of being left out of information sharing, (ii) struggle to continue home care, (iii) acquisition of nursing skills and collaboration with wife, and (iv) response to the childʼs precious growth. Despite challenges in caring for a child with PIMD, in-home medical and nursing care teaches fathers the significance of being a parent. These findings highlight the relationship between fathers of PIMD children and healthcare workers, who can provide support for fathers as dignified caregivers.
論文
琉球医学会
Ryukyu Medical Association
eng
journal article
VoR
http://hdl.handle.net/20.500.12000/0002016908
https://u-ryukyu.repo.nii.ac.jp/records/2016908
1346-888X
AN10369445
琉球医学会誌 = Ryukyu Medical Journal
38
1-4
1
12
https://u-ryukyu.repo.nii.ac.jp/record/2016908/files/vol38p1.pdf