| Item type |
デフォルトアイテムタイプ（フル）(1) |
| 公開日 |
2020-11-24 |
| タイトル |
|
|
タイトル |
Japanese fathersʼ experience with children with profound intellectual and multiple disabilities |
|
言語 |
ja |
| 作成者 |
Hasegawa, Tamayo
Koja, Yasuko
Endoh, Yumiko
Tamashiro, Yoko
|
| アクセス権 |
|
|
アクセス権 |
open access |
|
アクセス権URI |
http://purl.org/coar/access_right/c_abf2 |
| 権利情報 |
|
|
言語 |
ja |
|
権利情報 |
琉球医学会 |
| 主題 |
|
|
言語 |
en |
|
主題Scheme |
Other |
|
主題 |
Child with PIMD |
| 主題 |
|
|
言語 |
ja |
|
主題Scheme |
Other |
|
主題 |
Fathersʼ Experience with Living Child |
| 主題 |
|
|
言語 |
en |
|
主題Scheme |
Other |
|
主題 |
In-home Medical care |
| 主題 |
|
|
言語 |
en |
|
主題Scheme |
Other |
|
主題 |
Modified Grounded Theory Approach |
| 内容記述 |
|
|
内容記述タイプ |
Other |
|
内容記述 |
Children with severe or profound intellectual and multiple disabilities (PIMD), who have high medical care needs, are under constant pressure of survival and their growth processes are difficult to predict. Although research has shown significant psychological and social burden on parents taking care of such children, research on Japanese fathers has been scarce. This study aimed to clarify the suffering and judgment of Japanese fathers following the birth of a PIMD child and describe their experiences living with a preschool PIMD child. We also discussed the effect of nursing support on maintaining the dignity of fathers by deeply understanding the nurture experience. Verbatim records of semi-structured interviews conducted with eight fathers were analyzed based on the Modified Grounded Theory Approach. Twenty-eight concepts were generated along with the following four categories: (i) fear for the childʼs life and a feeling of being left out of information sharing, (ii) struggle to continue home care, (iii) acquisition of nursing skills and collaboration with wife, and (iv) response to the childʼs precious growth. Despite challenges in caring for a child with PIMD, in-home medical and nursing care teaches fathers the significance of being a parent. These findings highlight the relationship between fathers of PIMD children and healthcare workers, who can provide support for fathers as dignified caregivers. |
| 内容記述 |
|
|
内容記述タイプ |
Other |
|
内容記述 |
論文 |
| 出版者 |
|
|
出版者 |
琉球医学会 |
|
言語 |
ja |
| 出版者 |
|
|
出版者 |
Ryukyu Medical Association |
|
言語 |
en |
| 言語 |
|
|
言語 |
eng |
| 資源タイプ |
|
|
資源タイプ識別子 |
http://purl.org/coar/resource_type/c_6501 |
|
資源タイプ |
journal article |
| 出版タイプ |
|
|
出版タイプ |
VoR |
|
出版タイプResource |
http://purl.org/coar/version/c_970fb48d4fbd8a85 |
| 収録物識別子 |
|
|
収録物識別子タイプ |
ISSN |
|
収録物識別子 |
1346-888X |
| 収録物識別子 |
|
|
収録物識別子タイプ |
NCID |
|
収録物識別子 |
AN10369445 |
| 収録物名 |
|
|
収録物名 |
琉球医学会誌 = Ryukyu Medical Journal |
|
言語 |
ja |
| 書誌情報 |
巻 38,
号 1-4,
p. 1-12
|
vol38p1.pdf
